Arthogryposis Multiplex Congenita is a big diagnosis for little Khamiya Burt, 1, but her mom said despite multiple surgeries, including those to correct a cleft palate and club foot, that Khamiya is thriving.
“She can do things now that she couldn’t do before. It was a challenge that she overcame and she couldn’t have done that if it wasn’t for UCP.”
Narquita Fletcher of Huntsville said Khamiya was referred to Early Intervention immediately following her release from the Neonatal Intensive Care Unit in March 2015.
“Going into all of this blindly, I felt like the EI team was sent from heaven and UCP gave us hope, peace, and comfort,” Narquita explained. “Our family couldn’t ask for anyone better than the loving, kind, and sweet-hearted people at UCP. They have really made it home away from home for us.”
Khamiya currently receives occupational and physical therapies and will begin speech therapy soon. And even though Khamiya still doesn’t like splinting, Narquita said Khamiya “loves her therapists dearly.”
“We’ve come a long way with them,” Narquita said. “Splinting, she does not like, but it is so helpful. Khamiya can now use her hands to eat, so the splints have been working wonders. Sitting up was also an issue due to her neck control, but thanks to them she can now sit up with some support.”
When asked if she could make any suggestions to improve UCP programs and services, Narquita replied that she wouldn’t change a thing.
“I can only speak for my family, but it’s very rare that you come across nice, loving people who make you feel welcomed. In many ways it was hard before we came to UCP, but being surrounded by positive people helped turn our frowns upside down.”
To learn more about all UCP programs and services, call the UCP Therapy Center at the UCP Technology and Training Center at 256-859-4900.